The Importance of Patient Values (Or how TLC should make a show about what to wear to hide a catheter)

The idea that I am going to be unable to control my urination and so I'll be peeing into and then have to carry a bag of my own pee on my leg is pretty distressing to me. I know, intellectually, that things are going to be okay. Here's the good news: I spend most of my life sitting in a room with 34 people who are kind, compassionate people training to work in the medical field. I can spend the time I have a catheter sitting/ attempting to minimize discomfort and irritation, surrounded by people who support me and won't be skeeved out by my bag of pee. I have a very supportive partner who is going to pick up the slack created by my recovery period. I am relatively confident that he will still be attracted to me, although exactly what that looks like is still TBD. I'm also lucky because my mom is going to come down and take care of me the first weekend of my recovery, and that means mom's home cooking - if that's not good news I don't know what is. So what am I struggling so much with?

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How I dealt with the worry of a lack of known diagnosis (or why finding out I needed surgery was a huge relief)

Have you ever had a cold sore? If you've had one, you know that they are painful and horrifying and only ever develop right before picture day or a first date or your wedding day or whatever. It only takes one cold sore to realize that you never want to have a cold sore again, so... Continue Reading →

How Many Urgent Cares Does it Take to Get a Diagnosis (or tips on leaving voicemails about your vagina)

I started leaving voicemails about my vagina in late November 2016. I had a gnarly urinary tract infection a month before. The UTI was classic - it started as a general level of discomfort and evolved into feeling like my pelvis was on fire. Peeing was painful, not peeing was painful, and by the time I made my partner drive me to urgent care, I had blood in my urine. That was the first of 6 urine samples in the next two months.

About the Blog (or why I wanted to write about peeing on the internet)

The short story is this: I didn't want to talk about peeing on the internet. I started writing blog posts about discharge and urine and catheters and wanted to run the other way from all of it, stick my head in the sand and pretend that it wasn't happening. I started searching the internet for things like "how to hide wearing a catheter?" "what do white blood cells in urine look like?" and "constant urinary tract infection symptoms" - and didn't find very many resources for the things I wanted to know about.

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