I am now cath free, but still reflecting on my episode of care experience. Relevant background information: After months of persistent UTI symptoms and no answers, I had a great first meeting with the surgeon in January who gave me a provisional diagnosis, ordered an MRI, told me what the surgery would be if her provisional... Continue Reading →
You know someone gets really social media famous, and has a good handle on their fame, when they start getting real. It's often in the form of two photos side by side - one with perfect angles, lighting, and filter, and one untouched, no flexing, with three chins visible, and the text usually talks about... Continue Reading →
I have spent 7 days trying to figure out how to write about how awful this experience has been without completely freaking out people who may need a catheter in the future. However, I've come to the conclusion that sugar coating and rose-colored glasses aren't the solution. So rather than placating statements about how this too shall pass (although it will), here is what I have learned so far:
I found out that I might be having surgery in January. I finally ended up at the Urologist's office after months of funky symptoms and prescription after prescription for antibiotics. At that appointment, I got registered as a new patient, saw the doctor, had an exam, discussed a provisional diagnosis, was referred for imaging, and... Continue Reading →
The idea that I am going to be unable to control my urination and so I'll be peeing into and then have to carry a bag of my own pee on my leg is pretty distressing to me. I know, intellectually, that things are going to be okay. Here's the good news: I spend most of my life sitting in a room with 34 people who are kind, compassionate people training to work in the medical field. I can spend the time I have a catheter sitting/ attempting to minimize discomfort and irritation, surrounded by people who support me and won't be skeeved out by my bag of pee. I have a very supportive partner who is going to pick up the slack created by my recovery period. I am relatively confident that he will still be attracted to me, although exactly what that looks like is still TBD. I'm also lucky because my mom is going to come down and take care of me the first weekend of my recovery, and that means mom's home cooking - if that's not good news I don't know what is. So what am I struggling so much with?
Have you ever had a cold sore? If you've had one, you know that they are painful and horrifying and only ever develop right before picture day or a first date or your wedding day or whatever. It only takes one cold sore to realize that you never want to have a cold sore again, so... Continue Reading →
I ended up having to get several referrals for urologists due to requiring one that took my student insurance (not the easiest thing). But once identified, I made the earliest available appointment - 4 weeks from then, and I hit google up for more ideas for some relief, primarily focusing on pelvic floor involvement and... Continue Reading →
Getting to a diagnosis was a long process, and documenting it turned out not to be any shorter. Standard disclaimer: if you aren't interested in differential diagnosis of the female urogenital system, or are squeamish to conversation about bodily functions and secretions - feel free to skip this post entirely. You can get a quick... Continue Reading →
if you aren't interested in differential diagnosis of the female urogenital system, or are squeamish to conversation about bodily functions and secretions - feel free to skip this post entirely. You can get a quick run-down on my medical history here, which will give you all the context you might desire.